Checking In So You Won't Think I'm Dead or Something

 It's been several years since I posted anything, because I honestly have nothing to add. LDN is presumably the primary reason why my MS has been so stable for so many years. I'm grateful to report that I STILL haven't had a relapse. And none of my initial symptoms have worsened at all, and one has resolved. I'm still taking 12mg of LDN at bedtime, which was my idea.

 I'm 73 years old (as of last week), so naturally I have some symptoms of aging, but nothing new related to MS. 

 

I am WELL aware that I've been VERY lucky. I know most MS patients have a harder path. I wish you all the best. 

 

Hey, Long Time No See! Some New Diagnoses.....

I'm sorry I've neglected you. It finally occurred to me that those of you who have followed this little blog might have assumed, since I hadn't posted in over 2 years (!), that my MS must have gotten so bad that I couldn't post anymore.  

NOT AT ALL. Far from it. I'm pushing 70 and my MS is still VERY stable, with no relapses at all ever since I got on LDN. I never developed any new MS symptoms and the ones I had in the beginning never got any worse. I've been REALLY lucky.  My neurologist said that the disease courses of all of his patients who take LDN for their MS are unusually stable.  

 

The only change I can think of that's relevant to all this is that last year I asked my doctor if I could up my dosage of LDN, from 9 mg to 12, and he was fine with it; LDN helps me so much with pain. I have a seriously bad back, having lost 4 inches in height due to severe disc disease, and can't usually take anything but acetaminophen for it. It's hard to endure but LDN helps. Plus I had a very effective lumbar epidural steroid injection in January and I'll probably have another one in a few months.  

 

And in terms of meds and pain, etc., recently my very enlightened family doctor put me on medical cannabis, specifically a one-to-one CBD:THC tincture. I use 1 mg daily, sublingually. MS is a qualifying condition in almost EVERY state that offers ANY medical marijuana, and it helped SO MUCH with muscle spasms! I was able to get off of a pharmaceutical anti-spasmodic (Baclofen) that was really harmful to my renal functions. (I have severe kidney disease.)  I hadn't been using any other form of cannabis for months, which is another long story I won't digress to tell today, but it's wonderful having a clean, LEGAL source of cannabis that really helps me. My neurologist was enthusiastic about my trying it too.

Last summer I decided to put myself on a diet and lost almost 60 pounds, but then by winter the weight loss just stopped, which wasn't cool because I needed (need) to lose almost that much more. But I had also severely re-injured my spine during that summer and I was in so much pain I was just losing it. I asked my family doc for an MRI of my lumbar spine, which hadn't been imaged in 14 years, and he obliged. My urologist had also ordered a scan from the same place, a renal ultrasound, and both scans picked up something unexpected; cancer.

 

Turns out that although my spine was a regular train wreck, we weren't going to be dealing with that until we dealt with a tumor in my kidney. I even had to get off of LDN for awhile, which was scary but it worked out OK. It was just for a couple of weeks when I underwent a nephrectomy, which is removal of a kidney. Post-op pain necessitated my being on opiates for awhile and there's obviously no point taking an opiate and an opiate blocker. 

 

 Now I know a lot of you deal with this all the time, but this was the first time I'd ever needed to juggle opiates and LDN, because being able to tolerate opiates at all is a brand new thing for me. They'd always made me WAY too sick to be worth taking, but after the abdominal surgery in February I needed something so I tried what was offered in post-op, which was a Percocet, and it worked GREAT without making me sick at all. What a relief! I only had to take it for a few days, then switched to Tramadol (a milder opiate) for a few more days, and that was it, I was back on just Tylenol. Still am. But it's good to know I can take opiates if I have to again.

Anyway, I'd been worried that being off of LDN even temporarily might lead to a relapse, but it didn't. 

 

Something weird DID happen, though, something partly neurological, but it has nothing to do with MS or LDN. 

 

As of about January, before the surgery, I've been dealing with a new, as yet undiagnosed disease involving neuropathy. No, it's NOT the MS. It's something else. This particular neuropathy manifests itself as a sudden, intense burning pain in some random spot that lasts only a few seconds but which sometimes leaves permanent numbness. It feels like a scorpion sting except that scorpion stings keep hurting for hours whereas this neuropathic pain is always mercifully brief, except this one time.....it was in May. I felt that sudden burning, neuropathic pain (I thought), this time on my side, then I felt it again lower on that side, and then on my back at my waistline, all within about a minute. That weird pattern made me think it really might BE a scorpion stinging me under my clothes, so I started undressing and got stung on the hand as I was taking my shirt off! TWO scorpions dropped out of my clothes. That's how much this neuropathy feels like a 🦂 scorpion sting!

Oh, and around that time I also stopped sweating altogether; I mean, I can't sweat a drop, from ANYWHERE. That particular symptom is called 'anhidrosis', and I first noticed it in May. The neuropathy started in the winter, before the surgery, before the opiates, so the lack of LDN didn't cause any of it. 

 

So it turns out that when you put the weird neuropathy together with the anhidrosis, it adds up to a 'dysautonomia', which is a condition in which the autonomic nervous system (ANS), or some part of it, doesn't work properly. This may affect the functioning of the heart, bladder, intestines, sweat glands, pupils, and blood vessels. Aside from not being able to sweat, my B/P and pulse have been REALLY low lately, to the extent that I actually might have to take medication to bring my blood pressure UP. There are different kinds of dysautomic diseases but they're all incurable and only some symptoms are treatable. 

 

Anyway, I discussed this with my neuro at my semi-annual visit in July and he said that he knows exactly who he wants to refer me to for proper diagnosis, but that we might as well wait until COVID isn't such a big deal (meaning after we have a vaccine, so I'm guessing another year). I asked if it was because there's really not much to be done about whatever it is and he said "Yes", that pursuing a specific diagnosis would be "mostly academic". Also I got the impression that whatever it is might yield more depressing information, so why rush into it. Anyway, I guess I'll let you know what it is in a year or so. Whatever.

Oh yeah, and also in the Spring, as I was almost recovered from the nephrectomy, I suspected that on top of everything else I probably had a thyroid problem (symptoms: intense daytime sleepiness, feeling cold easily, constipation, hair loss, fingernails crumbling, etc), so I asked that my family doc run a thyroid panel and he did. Well, it turns out I have Hashimoto's Thyroiditis, which is an auto-immune disorder. Yeah, another one. My body's destroying my thyroid gland. Great. So I was put on supplemental thyroid and my levels are improving.  But I'm still tired, balding, with crumbling nails and I'm cold all the time. In Texas.

 

I'm sorry, I'm rambled on too long again, so I'll tie this up.  

 

So I have a lot of stuff wrong with me, but I'm deeply grateful that my MS is stable and eternally grateful for LDN. I'm navigating old age with a growing list of comorbidities but so are all my friends. I can't dwell on my own problems that much anyway because I'm so freaked out about what's happened to my country. But I won't digress into that either. 48 days until Election Day and I am SO voting! 🤞

 

Take care.  

15 Years Post Diagnosis Today...

...and I've been taking no prescription meds for my MS other than LDN since early 2005; that's almost 5,000 days on just LDN.

I had my annual visit with my neurologist a couple of weeks ago and he's still very pleased with my progress (as am I), or rather my lack of (the bad kind of) progress, since many MS patients would have converted to Secondary Progressive MS by now. But I've been fortunate enough to have suffered NO relapses, NO new symptoms, NO worsening of old symptoms, just holding steady.


So basically I KNOW that LDN forking WORKS, at least for me.

I'm still on 9 mg of LDN nightly, taking that larger-than-customary dosage because it also helps my chronic pain, which is important since I can't take opiates. And I'm still getting my LDN from The Compounder Pharmacy in Aurora, Illinois; I chose them more or less at random from a list of pharmacies with a good reputation for compounding LDN correctly, and I've seen no reason to switch.  

I still wish more doctors knew about LDN (and that they had the courage and the brains to prescribe it FIRST instead of last!), but at least these days more doctors know about LDN than  when I started on it, and that's some progress. (The good kind of progress!)


I'm 67 and I was already mostly disabled from a spinal injury since before I ever got MS, and my spinal issues are still worse than MS for me. Of course I realize that I could easily convert to SPMS any day without warning, but I try not to ruin today by worrying about what might happen tomorrow. Today I'm hanging in there, and I'd totally expected to be in vastly worse shape by now, and I'm not....just older.

So, 15 years since my official diagnosis (and I guess I probably had the disease for a year or two  before that), and I'm still RRMS with no Relapses. I don't know what else to say. THANK YOU.


Other than that, it's just crazy hot summertime here in dumbass red Texas, hotter every decade than the last and in a dangerous drought too; it's been over 100 degrees almost every day for several weeks with no relief in sight, so of course I'm pretty much trapped indoors with the air conditioning from about 8:30am until about 10pm. It gets a bit tedious but I'm mostly just really grateful to have a/c; not everyone does.

It should cool off at least a little in another 6 - 8 weeks or so and I cannot wait! I'd head someplace cooler like Vermont (or even Canada!) right now if I had the means, but alas I do not.

But being a Geezer with MS, my best friends (who are all about my age) are all dealing with much more serious health issues than mine, so it really keeps my little issues in perspective...

I hope you're doing well and making your way through the summer (assuming you're in the Northern Hemisphere). This too shall pass.

Love from Texas~

Bummer Summer's Coming (but don't despair; there's good news too)

As a person living with MS, I suffer from heat intolerance that exacerbates some of my usual MS symptoms if I get overheated. About 80% of us deal with that inconvenience, and it's not just in hot weather. Hot showers, hot tubs, sauna, etc can make a lot of us dangerously weak too. It doesn't last long (hours, not days in my experience), but it can really screw up your day.

One of my more colorful friends and former-coworkers, "Mary K.", had been living with MS, including extra bad heat intolerance, for much longer than I have, and I've been dealing with it for over 15 years myself. She's rarely had use of a dependable car, so she sometimes had to take a bus to get around town.

In summertime weather (about 6 months out of the year here in Texas), taking a bus almost always  involves waiting and walking in extreme heat, which has led to such extreme symptoms that she's had the police called on her at least three times for suspected public intoxication,  because her speech was slurred and she was staggering.

Note: Mary K. does not drink; she simply has MS and sometimes she gets hot. If her temperature goes up even a fraction of a degree, her symptoms worsen.

There are two things I can offer that can help you deal with the heat; I've written about them previously but as it's summer again I'll re-post it.

First, there's an MS ID card for MS patients to carry around and to show if they need to explain their symptoms, for example, if they've gotten so overheated that they have trouble explaining themselves, or when jerks just don't believe you.  I carry the card always, although fortunately I've never needed it for anything.

If it interests you, you can apply for an MS ID Card via this link: https://www.mscenter.org/support/ms-id-cards. You'll need $10 and a physician's signature indicating that you have MS. They don't need any medical records or anything, just a note from a doctor. It can take a few weeks to get it.

Second, if you're in the United States, the Cooling Program of the MSAA (Multiple Sclerosis Association of America) wants to help you deal with heat issues by cooling you down simply and directly; they will give you some "cooling equipment" that you wear over your clothes. I got mine last year and it's been a Godsend!

From their site: "The MSAA Cooling Program offers cooling vests and accessories for adults with multiple sclerosis as well as children diagnosed with pediatric MS. Cooling vests are commonly worn over clothing and contain insulated pockets that hold small ice packs. MSAA also offers smaller products to wear under clothing as well as accessories to help cool the neck, wrists and ankles. MSAA provides these products at no charge and items are shipped directly to the client. If you have any questions, please call MSAA at (800) 532-7667 or email clientservices@mymsaa.org. https://mymsaa.org/msaa-help/cooling-products/."

 

This is what I chose: I use the cooling scarf all the time. I've rarely needed the vest but it's been awesome when I did use it.

Applying for cooling equipment is a bit more complex than applying for a simple MS ID Card, because after all, the MSAA is offering up to $100 worth of cooling equipment for free, so there are some income guidelines to meet.  Hey, just check it out and see if you'll qualify.  Can't hurt.

Someone recently asked me about LDN and its effect on heat intolerance, and honesty I'm not sure if LDN has any effect on heat issues.  Anybody else have an opinion on that?

I have been taking LDN steadily for over 13 years, and I've never once had problems as severe as Mary K.'s in all that time, so maybe it has helped me in that regard too. Never thought of it.

Tha's all for now. Good luck and stay cool.

LDN FREAKING WORKS!

I have news! Very encouraging news! 😀

I don't post here very often because there's usually nothing new to say re: MS and LDN.....but today I have some pretty good evidence that LDN doesn't just make you FEEL better (which is a good thing anyway), it actually WORKS to help stabilize the immune system.

But first a bit of background.....

In case you haven't read any of my earlier posts, I've been on nothing but LDN for my RRMS for over 13 years, and the only time I had a relapse in all that time was during a period when I actually WASN'T on LDN for about a week because of a faxing error between the doctor's office and the out-of-state compounding pharmacy: at the end of that week of no LDN, I got a wicked bad case of labyrithitis (technically I met the criteria for Meniere's Disease) that isn't too bad anymore but for which I still have to take promethazine daily or I get dizzy and nauseated just reading or watching TV....

But other than that, nothing new has happened to me at all during that time MS-wise (well, except I got older), and the symptoms I had in the beginning (memory issues, mild numbness on my left side, heat intolerance, clumsiness, mild swallowing difficulties, etc) didn't get any worse. Of course they didn't go away either, but I never expected them to. Actually, the numbness definitely DID improve quite lot.

I'd been diagnosed in 2003, and treatment-wise, I took Avonex for awhile and later Copaxone, and washed out rather dramatically on both. I literally couldn't afford anything else, and I stopped seeing a neurologist because the last neuro was pretty dogmatic about the need for every MS patient to "find a way" to take whatever was newest (and most obscenely expensive!), or else it meant I didn't care about my health. [Yeah, that was literally said to me!]

So when it seemed that conventional neurology had nothing much to offer, I decided I was done with neurologists for the foreseeable future....which turned out to be about 13 years....

My primary care doc (a freaking SAINT who was also my employer and BFF) prescribed the LDN for me, but in 2009 she retired and the neurotology-focused ENT I'd been seeing for the inner-ear issues took over the LDN prescription, which of course I appreciated a lot.

But last year, in January of 2016, I found out that the  ENT didn't take Medicare (my only insurance) anymore, plus he had some ideas I found pretty sketchy, so at that point things got tricky....where was I going to get my LDN? I was really worried. I had to pay out of pocket to see him that one last time, but at least he was nice enough to give me a whole year's worth of LDN refills, which he prescribed in 3 mg caps for me to take up to 4 of per day, so I could experiment with slightly higher doses (up to 12mg). That gave me 120 caps a month.

I had a third new primary care physician (PCP) because he first one changed his specialty and the second one retired, but she was squeamish about prescribing anything for symptoms that might be MS-related, and I'd asked her about something for nocturnal leg cramps, which of course anyone can get, but mine got worse after I got MS, so she insisted that I see a neuro.

She referred me to a neurologist who had terrifyingly bad online reviews and almost no good ones, so I passed on that bad movie without ever buying a ticket and just kept looking. Then that new PCP, who barely knew me and didn't want to prescribe for me, sent a letter stating she was moving away and that I had to get yet another new PCP, the 4th new one in 7 years. That was fine with me. I found a fourth new PCP, but that one also wanted me to be under the care of a neurologist, so I agreed but she referred me to the exact same lunatic! Apparently that clinic only knows of one neurologist to use for referrals...so I passed again on that recommendation and kept trying to find a neurologist on my own who sounded open-minded. But I wasn't having much luck....lots of neurologists won't see people with MS at all; even the neurologist who diagnosed me doesn't see MS patients anymore. 


Anyway, as the year's worth of LDN refills was waning, I emailed my old ENT's office in desperation, asking if he knew of ANY doctors who prescribed LDN, preferably neurologists. I got no direct response but noticed that another 6 months of refills had been authorized, so that was super nice of him.

Eventually I DID find an Austin neurologist who had posted some particularly encouraging, open-minded-sounding things online, and from what I saw and read, he seemed reasonable and nice, so I made an appointment and almost got my hopes up. It took months to get in to see him but I finally met him last week. 

As I waited in his reception room, I began to worry; was I going to be judged for NOT having been under a neurologist's care for all those years? I felt like I was showing up for a class I'd been cutting all semester; I hadn't felt that was since I cut about half of my 8:00am Oriental Lit classes in 1970....

(Not really; I probably got a B-)

Well, not only was he a VERY "reasonable", open-minded neurologist and completely non-judgmental, he actually knew and loved my saintly old primary care doctor (that BFF who'd moved away), AND he already prescribed LDN for lots of people!

I was so happy and excited to learn that I had a source for my LDN and a wonderful new neurologist that I completely spaced out asking him for something that might help my leg cramps! Oh well....that'll wait.

So....my awesome new neurologist and I discussed my history and symptoms, and he suggested that we get a new MRI of my brain. I hadn't had one since 2005 because I wouldn't have been able to take any different medication no matter what it showed so why bother? He didn't insist at all, just kinda wanted to get a baseline, plus he said he hoped it might show only relatively minimal changes, which would support the use of LDN. So I agreed and it was scheduled; my part only cost $200.

Well, I had the MRI yesterday and the nurse just called with the results. The MRI showed....(are you ready for this?)....... only the most MINIMAL CHANGES....over all those years! I guess on some level I'd been a little worried that, despite the fact that my MS had always seemed  pretty stable to me, maybe my MRI would show a tiny shrunken brain full of spots and scars. See, I was already pretty well disabled before I ever got MS, due to a spinal  injury, and that problem HAS worsened and makes life difficult and painful, but my MS....not so much really. Same challenges it presented in 2003. 

To be fair, I know we can't know for certain what would have happened to me if I'd been on something else, or if I'd been on nothing, because MS is so unpredictable. But statistically it looks very probable that at least in my case, LDN FREAKING WORKS!

I know that when I was diagnosed, I really didn't expect to still be walking at this point at all, since I already used a walker before I ever got MS. 

I knew I was doing better than I'd expected, and now I have an MRI that solidly backs up my perception. I am so happy and so grateful, I just had to share it with you. 

Now it's possible that maybe it is important to be on some of the conventional therapies at first, during the inflammatory phase of RRMS (or maybe not), but later, during what's expected to be the degenerative phase, those meds may not do much except waste a staggering amount of money. Anyway, LDN has been right for me, and I'm SO relieved that I no longer have to worry about how to get it. Maybe a lot of other neurologists have become fans of LDN too in the last decade when I wasn't looking; I sure hope so!



I guess that's it for now. As always, I wish you all the best.

NQSLDN* or “Back to Awesomeness on a Higher Dose of LDN”

I’ve been experimenting with the dosage of my LDN. Or at least, my DOCTOR AND I have been experimenting with a higher dose of LDN. (*Maybe I should start calling it “NQLDN” for “Not Quite So Low Dose Naltrexone”? Nah, that I don't see that catching on.)

When I first got on LDN, I’d been dealing with chronic pain from a back injury for years, and the effects of LDN on EVERYTHING were strongly positive and undeniably real, even the back pain; I just felt SO much better. Specifically, I had less pain and stiffness, I could walk practically perfectly, I could think and speak more clearly, I never got overwhelmed- EVERYTHING was MUCH improved and life was much easier. The fact that my back problems were vastly better was unexpected and really for me it was the best part. I’d lost 3 inches in height so my spinal issues were still significant, but better.

Well, I don’t remember exactly how long it was (a year or so?) before my back was worse and eventually I just wasn’t feeling quite that “awesome” anymore. The basic problem was constant, exhausting back pain and discomfort, which kept me from sleeping more than two or three very interrupted hours a night no matter what I did or what I took, and there's kind of a domino effect when you never sleep......

NOT a neat domino effect....

but a BAD domino effect

For awhile, LDN had helped with all that pain but as my back problems got worse, I guess the LDN just wasn’t enough anymore, so for the last few years I’ve been struggling with chronic pain and resultant sleep deprivation, which naturally has taken its toll on me. Plus I’m 65, tired and unfocused from sleep deprivation and before I knew it I realized I found I was resigned to just playing defense and I’d been playing it for years. Kinda grim.

But my MS symptoms were and still are VERY stable, so of course I kept taking my LDN for years beyond that initial awesome period. Like anyone with MS, I have no way of guessing what would have happened to me if I’d chosen another treatment path, or NO treatment, but I’ve probably had MS for about 14 or 15 years now and I’m no worse off now than I was in 2003 when I was diagnosed. As long as I’ve been on LDN I haven’t developed any new symptoms. So for me, that’s enough. I still have zero interest in taking anything else.

But a few months ago I started wondering about things…..after being resigned for years to not never feeling any better, all of a sudden I was questioning WHY I’d settled for semi-muted misery so easily. I was feeling like I’d given up perhaps prematurely, I’d accepted my situation too easily and all of a sudden I felt like fighting. Or maybe not FIGHTING exactly but at least like TRYING something new. I wanted to try to feel better again. I have chronic pain, I can’t take opiates so I never freaking SLEEP, and I knew I needed a better quality of life than this if at all possible.

So I wondered whether maybe I could recapture the initial awesomeness I’d experienced on LDN with a larger dose. Could it be that simple? I mean, who knows? That’s one of the frustrating things about taking LDN; it’s not mainstream enough to have an accessible body of data on what happens at various dosages and protocols.

Anyway, one day when I was pondering it, Larry Frieders, the pharmacist at The Compounder Pharmacy in Aurora, Illinois whose always made my LDN, published an article in his January 2016 newsletter called “What Would Happen If I Took Two LDN Capsules?” 

Larry Frieders RPh, MBA, MA

What indeed! Just what I’d been wondering and really the validation I needed. I SHOULD question the dosage. Who says Low Dose Naltrexone has to be so  LOW?

So I asked for an appointment with my doctor, and miracle of miracles there’d been a cancellation for the very next week, so I went in and asked him about upping the dosage and he was FINE with it! In fact he was enthusiastic about trying a higher dosage than the 4.5 mg nightly I’d been on for about 12 years; I’d asked about maybe taking twice that. After some discussion he wrote me a prescription for up to four 3 mg capsules nightly, for flexibility of dosing. So up to 12 mg a night. Kickass!

I sent off the new script to Larry and waited, but while I was waiting I went ahead and tried taking two 4.5 mg LDN’s at once at bedtime.

OMG it was freaking awesome!  9mg at bedtime and I was SO much better the next day. Standing straighter, walking better, THINKING and FOCUSING more easily and clearly, just feeling SO MUCH BETTER! And of course WAY less back pain. Not perfect but SO MUCH BETTER.

Just to be a good patient, I went back to the 4.5 mg protocol for the time it took until the new bottle of 3mg LDN arrived, which only took two days after they got my Rx in the mail.

I first started on 6 mg nightly for a few nights, but I wasn’t real sure it was making much of a difference. I mean, it was a little improvement, I was pretty sure about that, but not quite what I was hoping for. Maybe I should have been more patient and stuck at 6mg for a couple of weeks, but dammit life is short and I wanted to feel better. So I upped it to 9 mg nightly, and I am delighted to report that I’m feeling AWESOME again!

 

I plan to stick with 9mg nightly as long as it feels right, and I’m updating my doc as requested; he wanted me to let him know if it was worth a try, so he'd know whether to consider larger doses on some of his other patients who take LDN.

I’ll let you know how this progresses but unless you hear differently assume I’m still on 9mg of “NQSLDN” at bedtime, and that I’m still feeling the awesomeness.

__________________________________

UPDATE: Well, the super duper awesomeness of a higher dose kinda faded. I moved up to 12 mg and took that for awhile, then went back down to 6mg and held at that level for awhile before deciding that 9mg nightly is my sweet spot. I've been on 9mg steadily for over a year for over a year.

And I DO have recent evidence that taking LDN has kept my MS stable, in the form of an MRI done just yesterday showing only the most MINIMAL changes over all these years! Read my next blog post....

Low Dose Naltrexone.Org

Hello and Happy July :o)

This is just a quickie to make sure you all know about the original and primary website that deals with LDN, "Low Dose Naltrexone. Org". It may seem a bit flaky around the edges sometimes, but everyone taking LDN, or even thinking of taking it, should visit that site. If you need to know how LDN is made or who invented it or what it can be used for or where to get it, that's where you want to start.

For one thing, it has a great list of 8 pharmacies that have a solid reputation for compounding LDN properly, in a the quick-release form. And all those pharmacies have websites with more information.

But most people will need a grain or two of salt to swallow everything on that site. Just bear in mind that this is one of those sites that is SO enthusiastic about all the various uses that are being tried for LDN that it winds up sounding a bit like a snake oil ad. 

Cures "death"? Wow.

But LDN is NOT snake oil. NOTHING is a panacea, but clinical trials tests with LDN really ARE promising, and it is being tried as a treatment for a lot of things besides MS. For example, people with Crohn's Disease in particular have been show in clinical tests to significantly benefit from LDN, and others tests have shown benefits for other things, but my experience is solely with MS. 

The thing is, the list of diseases and illnesses that LDN is thought to help is silly long, and I worry that over-hyping it will damage its credibility. I guess I'm just anxious for some proof. 

Anyway, Low Dose Naltrexone.Org has been updated fairly recently with a new video, made in Norwegian with English subtitles, but unfortunately, my lame, limited satellite internet connection doesn't allow me to watch videos, so I have no idea whether it's worth your time or not. It's up to you. 

Here's what they say about it:  

"An Eloquent Video, A Must See — April 2015: Norwegian, with English subtitles
"At long last, a most professional, most persuasive video concerning LDN!

"It was made in Norway in 2013, with English subtitles. Far from a sales pitch, it tries to tell an evenhanded story. Its sole omission, which one often finds in Europe, is the total disregard for the role of the late Bernard Bihari, M.D., who discovered the human uses of LDN in 1985. Other than that, it is nearly perfect and a joy to watch. It has led to an avalanche of LDN sales in that country (from a mere 300 users beforehand, it is now used by some 15,000 patients in Norway). 

"Please do not miss watching: http://www.tv2.no/a/5316228. Enjoy it!"

That's it for now, just wanted to touch base and make sure you all know about this site.

From Hella Hot Texas, HOORAY for air conditioning! Laters.